The Caregiver's Beacon Newsletter


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                                                     The Caregiver’s Beacon (tm)
                                        “Tell me why – Show me how – Hold my hand”
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             August 18, 2001                                                                             Vol. 3 No. 15
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                                        ALZwell Caregiver Support and ElderCare Online

                                     http://www.alzwell.com and http://www.ec-online.net
                                           Serving the Needs of Caregivers Since 1996
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Dear Friends,

This issue of the newsletter will be brief. The September 1 issue will be a complete edition.

I must apologize for the downtime that our Forum experienced over the past week. It seems that just when I was walking out the door for a long-overdue vacation, the Forum decided to get cranky and shut itself down. It seems that even computers insist on some time off. In the future, I will be "pruning" and archiving discussion threads more aggressively. That means that some of the older conversations may be deleted. Don't take this personally! It is in the interest of making the Forum run properly. Some discussion threads may be copied and saved to become parts of future articles or newsletter commentary. This way we can maximize the number of people who benefit from the ideas shared in our Forum.

In future issues of this newsletter we will include more text messages from our sponsors. This doesn’t mean that we have “sold out.” The hard fact is that it costs money and time to keep these resources going strong. I have decided to limit the types of advertising that we accept: We will not permit banner ads on our websites, nor will we rent out our mailing list. Any communication from paying advertisers will be approved and edited before being placed unobtrusively into the newsletter. Of course you have the option to just scroll past the ad, but I ask that you read it since it may be appropriate to your situation. These ads really don’t pay much, but they are a way for us to gain at least a small amount of funds to pay for website hosting, forum moderators, and articles.

We have always managed our websites with compassion and integrity. As we look for ways to sustain our mission, we will continue with those ideals in mind. Our relationship with you is built on Trust: A belief that we are sincere in our mission, and genuinely concerned with your interests. I think that our actions over the past four years confirm this.

Kind Regards,
Rich O’Boyle, Publisher
ALZwell Caregiver Support
ElderCare Online
Prism Caregiver Education Series

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INSIDE THIS ISSUE

The Forum: Updated and Back Online
News & Views: Recent Developments of Interest to Caregivers
Caregiver Voices: A Poem by Louisa Pomeroy
Keepin’ Up With ALZwell: Arlene Francis Site of Excellence
Chat Schedule: Updates for August
Subscription Information

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THE FORUM: Updated and Back Online

I must apologize for the downtime that our Forum experienced over the past week. It seems that just when I was walking out the door for a long-overdue vacation, the Forum decided to get cranky and shut itself down. It seems that even computers insist on some time off. In the future, I will be "pruning" and archiving discussion threads more aggressively. That means that some of the older conversations may be deleted. Don't take this personally! It is in the interest of making the Forum run properly. Some discussion threads may be copied and saved to become parts of future articles or newsletter commentary. This way we can maximize the number of people who benefit from the ideas shared in our Forum.

NEWS & VIEWS: Recent Developments of Interest to Caregivers

Our collection of news articles has been updated. We browse many of the best sources for news available and then collect digests of the articles into The Forum message board. You can read some recent articles dealing with topics such as:
- Prescription Drug Proposals on Capitol Hill (Advocacy & Activism)
- Hoaxes Regarding Government Refunds: Watch Out (Caregiver News)
- Bush’s Stem Cell Decision (Stems Cell Research, Issues, Questions)
- Treatment Reverses Alzheimer’s-Like Damage in Mice (Research Updates)
- Research updates from scientific journals provided by the Alzheimer Research Forum

You can access the complete article digests in The Forum at http://216.122.139.136/cgi-bin/ultimatebb.cgi?ubb=forum&f=26

CAREGIVER VOICES: A Poem by Louisa Pomeroy

On the 20th of August, my Husband will have been gone eleven months. I would think by this time, the pain of his dying would have diminished, but it won’t go away. My head says it is better he died and was released from his pain and his confusion. He hated being the way he was and wanted to die and he got what he wanted. He was 85 years old and had been a very active man. He worked hard and was so smart. Then to see him not be able to do simple things he used to do or remember his children names. He had to wear diapers and have me clean him up. I never minded doing for him, but I just wanted him to retain his self-respect.

That's why I got so angry at the Doctor evaluating him, he acted like Bob wasn't even in the room. I told him, "Ask my husband. He is sitting right here!" I wrote the Doctor later saying I thought he had been very rude to ignore Bob the way he did. If Bob did not respond to any questions, then and only then, I would try to tell the Doctor what he wanted to know. As I told you in the past, from this meeting, I decided to write Bob's Family Doctor a week before his appointment, informing him as to the real condition of Bob. This way, when the Doctor came in for the 15 minutes allowed each patient, the Doctor would have all the information he wanted. It helped Bob and the Doctor and me.
The Doctor said he thought that it was a good idea to write before the appointment.

You were kind enough to print a Poem I had written for Bob's Funeral Service. Well, I have just written another one and thought you might like to read it.

July 19th, 2001

It will be 10 months tomorrow,
Since my Husband died,
There is hardly anything to help
Me, that I have not tried.
I have been to a Counselor,
To help me cope with Life,
The problem I have, is I don't feel
like a Widow, I feel like a Wife.
I live alone in our little House,
There is always something to do,
I work hard to get rid of clutter,
And am glad when the day is through.
Sometimes I find a Shirt my
Husband used to wear,
I wash it and fold it, and
Place it in his drawer with care.
Maybe in time, the ache in my
Heart will fade away,
But, right now it is still with me,
every night and every day.

Poem's from the Heart,
Fidencia (Member name Weezie)

KEEPIN’ UP WITH ALZWELL: Arlene Francis Site of Excellence

Recently ALZwell Caregiver Support was awarded the Arlene Francis Site of Excellence. I was very pleased and honored to accept the award on behalf of Prism Innovations and Susan Grossman, who established the website over four years ago.

Many of you know Ms. Francis as a leading lady of early television. She starred for 25 years on “What’s My Line” and worked variously in radio, Broadway, and film. She died on May 31, 2001 at the age of 93 of natural causes. She had been suffering for many years from Alzheimer’s Disease. Although her first love was the stage, she was most well-known for her vivaciousness, intelligence and warmth on television, having been declared by Newsweek to be the third most famous woman in America during television's golden age of the 1950's. She continued to have her own radio show in New York until her early 80's, spending the last eight years of her life in San Francisco.

The Arlene Francis Site of Excellence award was established to acknowledge and honor web sites, which are primarily dedicated to providing information, support, and assistance to Alzheimer's victims and/or their caregivers. An Arlene Francis Site of Excellence must meet the exceptional standards of excellence on which Arlene Francis lived her life.

Please visit Arlene Francis’s website and view previous Sites of Excellence at http://www.arlenefrancis.com

CHAT SCHEDULE: Updates for August

Enter the chatroom from the front page of either website or at http://www.ec-online.net/chat.htm. All times are U.S. Eastern Standard Time (GMT –5). Topics are suggested and NOT required. We always focus on the issues and that our members want to discuss.

August 22 (Wednesday 1:00 to 2:00PM EST) “Sugarlips’ Chatroom:” Host Vicki Gardner welcomes caregivers for a social and networking discussion group on the topic of “Expressing Our Emotions.”

August 22 (Wednesday 9:00 to 11:00PM EST) “Bubblehead’s Chatroom:” Host Edyth Ann Knox leads a supportive chat group for dementia caregivers on the topic of “Eating Tips for People with Dementia.”

August 23 (Thursday 7:00 to 9:00PM EST) “Healing Loss:” Host Julie Siri leads a discussion group for people who have lost a loved one to premature death, Alzheimer’s Disease, or other illness.

August 23 (Thursday 9:00 to 11:00PM EST) “ElderCare Answers:” Host Rich O’Boyle leads a discussion group for people caring for aging loved ones on the topic of “Quality of Life.”

August 29 (Wednesday 1:00 to 2:00PM EST) “Sugarlips’ Chatroom:” Host Vicki Gardner welcomes caregivers for a social and networking discussion group on the topic of “Expressing Our Emotions.”

August 29 (Wednesday 9:00 to 11:00PM EST) “Bubblehead’s Chatroom:” Host Edyth Ann Knox leads a supportive chat group for dementia caregivers on the topic of “Eating Tips for People with Dementia.”

August 30 (Thursday 9:00 to 11:00PM EST) “ElderCare Answers:” Host Rich O’Boyle leads a discussion group for people caring for aging loved ones on the topic of “Quality of Life.”

Enter the chatroom from the front page of either website or at http://www.ec-online.net/chat.htm.

SUBSCRIPTION INFORMATION

The Caregiver’s Beacon is published bimonthly by ElderCare Online and ALZwell Caregiver Support. To subscribe to this free newsletter, visit the subscription information page at http://www.ec-online.net/Knowledge/Newsletters/subscribe.htm.

You may also go to the main page of the website at http://www.ec-online.net or http://www.alzwell.com and add your e-mail address to the white box and click on the "Subscribe" button (just one click!).

To unsubscribe from this list, simply (1) reply to this email message with the word "UNSUBSCRIBE" in the Subject: line, and (2) include your e-mail address in the body of the message. Many e-mail programs do not put your complete name@ISP.com in the To: line, so it is impossible to track down your address.

(c) 2001 Prism Innovations, Inc. All Rights Reserved.

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